- A woman identified as Kitawa Charity is terminally ill and on palliative care; she is the sole caregiver of her 16-year-old severely autistic son Luke
- The woman's only wish is for her son to find a loving home when she is no longer there to take care of him
- Charity said it is her hope that those who will take care of her son when she's no more will show him all the love he needs
A 16-year-old boy, Luke plays with his mother’s fingers as he lays next to her, occasionally stealing glances and smiling at her.
Mom and Son moments
Kitawa Charity is terminally ill and cannot walk without assistance as she’s paralyzed on her right side, but the innocent boy doesn’t know this.
Charity constantly reminds him that she loves him very much, and he just stares at her and smiles. He has a beautiful and innocent smile.
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Luke is a severely autistic child. He is also nonverbal and has to be bathed, fed and in diapers and needs around the clock care.
A bubbly Charity tells TUKO.co.ke in an interview at her house:
“He doesn’t know I am in pain.”
Charity is the sole provider and caregiver of her only son.
She has generally been okay health-wise until one morning in 2018 when she was driving to work.
Life changed in a blink of an eye!
She said a sharp pain pierced her chest. It was so painful she had to park on the roadside to let it pass.
“I later attended two meetings and was headed to the third one when I decided to check into a hospital and get checked. I walked myself into the facility, but was surprised to see nurses panic when they saw me.”
At the triage, the nurses discovered that Charity’s blood pressure had shot up abnormally. They had her checked three times to confirm. After that, the doctors had to quickly organize for her to be moved to the main hospital in an ambulance.
It was at the main hospital that she was informed how bad the situation was.
“I was told that I had blood clots but their location was yet to be established. The next day I was sedated and later that night a clot moved to my heart (Myocardial Infraction). I had to undergo an emergency coronary angioplasty to remove the clot and had a stent put in. I was later put on life support in ICU then later HDU. I quickly recovered and was moved to the normal ward then discharged.”
A week after she was discharged, Charity could not catch any sleep. Later that night, she felt yet another sharp pain at 1 AM. She tried to get out of bed but fell hard on the floor as one side of her body was already paralyzed, yet she had not noticed.
She felt nauseous and tried to vomit, but her throat too was paralyzed, causing her to choke on her own vomit. Charity crawled out of bed to the bathroom but collapsed in the corridor where her house help found her and called for help.
She was resuscitated twice and rushed to the hospital. At the hospital, the doctors discovered that a clot had gone to her brain, and she had suffered a stroke and had lost her speech. A couple of months later, she developed difficulty breathing and had to be rushed to hospital again.
She was found to have a clot in her lungs (Pulmonary Embolism); further tests revealed that she had an autoimmune disease called Antiphospholipid syndrome, which causes the immune system to attack itself and creates blood clots which then move to attack her major organs.
Counts all her blood clots
The condition causes her body to develop clots rapidly to a point she even counted all the familiar clots in her body.
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In her words:
“I have five on my hand, one in the leg and two in the heart and one in my lungs currently."
The ones on her hand are visible and cause her severe pain.
So far, Charity has had three heart attacks, two strokes, three pulmonary embolisms and three Deep Vein Thrombosis.
The condition is an extremely painful one; she survives on morphine. She has now been put on palliative care but is worried about her only son.
A teary Charity said:
“Who will take care of him? I am afraid that no one will love him the way I love him when I am gone. If it were possible I sometimes wish I could take my son with me so I can love and protect him, all the time."
She weeps at the thought of leaving her son to suffer; she worries about him but hopes that God will guide the people who will take on the responsibility of raising him.
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In her words:
“Raising a special child is no small feat. I only ask that those who take him exercise a lot of patience with him. It is not easy but I know God will guide them."
To ensure that his future is well taken care of, Mama Luke has set up an M-changa platform named ‘After I’m gone - Supporting Luke G’ to secure his future.
The mother hopes to use the contributions to put up a trust fund for his long-term care.
18-year-old stepson organises unofficial adoption ceremony
Legit.ng previously reported that an 18-year-old boy identified as Gavin surprised his stepdad, Chris, with an unofficial adoption ceremony.
In a video that was shared on Instagram by @nowthisnews, the adoptive father could be seen getting emotional as the person officiating the adoption ceremony read out Gavin's mum's statement.
Gavin's mum, Lyndsey, noted that her son couldn't have asked for a better father, adding that Chris has been the one in his life since he was four.